Finally there was a reason for the horrible meltdowns he experienced several times a day. He would become so rigid and violent. Headbanging and lashing out at anyone or anything that tried to intervene. They would often last 45 minutes to an hour, and I always wondered how such a little body had the capability to endure a physical upset of such magnitude that lasted that long.
But he did, and he experienced these twice or three times a day for months. I would often cry myself to sleep, because it hurt my heart that my beautiful special son was hurting in such a way where violent upsets were his only way of handling it. His lack of verbal communication continues to be a struggle on a daily basis.
He relies mostly on hand over hand at home, and it can be very frustrating to have him constantly pulling on me to take me to where he wants, and hopefully I guess right. Although we are receiving home therapy in addition to the support he receives through EASE, I feel as though I am always just keeping up with his demands, and my concerns for the future can be overwhelming at times.
Relationships with family have become strained, and I have lost friendships directly or indirectly because of how Autism has affected our family. So few people know what Autism is, and how drastically it can impact a family unit.
We rarely go out as a family. Family outings are limited to outdoor activities, and happen only when there is a constant support for Braydon so he can be supervised continually. Birthday parties, and other social activities are not participated in, due to past experiences resulting in severe meltdowns. Any time we do leave the house, a great deal of preparation is required, and the acknowledgment of having to leave at a moment's notice is always a possibility.
While I can't change the diagnosis that my children have, what I can try to change is how my friends and family view Autism. I'm not a doctor, and am far from an expert, but I will always be there to answer questions.
Please don't ever think you will offend me with questions! After many false starts and dashed hopes they eventually, and luckily, found their son. How I Met My Son is mor When journalist Rosalind Powell and her husband wanted to start a family, they had no idea of the journey that lay ahead.
Both joyful and heartbreaking, the path to becoming a parent is laid bare. The story explores the sadness of infertility, the rigours of IVF, the minefield of social services, the intensity of the assessment process, the difficulties of choosing a child and being chosen and the happiness and shock of finally bringing that child home.
The Journey of Me and My Son
A candid, compelling and inspirational book about what it means to be a parent of a child that isn't, biologically, your own. Kindle Edition , pages. To see what your friends thought of this book, please sign up.
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Lists with This Book. This book is not yet featured on Listopia. Jul 31, Bel Murphy rated it it was amazing Shelves: A truly wonderful book. Dec 07, Gayle rated it it was amazing. Amazing read - it was honest, informative and heartwarming!
My Journey with My Son and Autism
Nick Grimaldi rated it it was amazing Jun 03, Mesh Floyd rated it it was amazing May 24, Rachel Barber rated it it was amazing Aug 22, Lizzy Burton rated it really liked it Mar 10, Kedar rated it it was amazing Feb 23, AJ will be 8 years old this June. He is severely affected by autism and remains non-verbal. However, AJ is much more than his autism. He is also magnificent, affectionate, funny, quirky, intelligent and adorable. Everyone told me I was crazy, sleep deprived or had new mom nerves, but a mom knows. When he would look at me, it was always as if he was looking through me.
It was always so hard to get him to smile and when he did, it was extremely short lived. There were no typical baby babbles, only gurgles. All signs I would later learn pointed to autism. We started with early intervention when AJ was about 19 months old.
Power Publishers, The Journey of Me and My Son, ISBN
A therapist would come into our house twice a week and try to engage with AJ. After the session was over, AJ was still in his own world, and the therapist was exhausted, but we had just started so I needed to allow time for this to work, right?
Several months later, I took matters into my own hands and brought him to a well-regarded speech specialist. After a few minutes, I dried my tears and decided to fight to give my son the best life possible.
My research took me to Autism Speaks, which connected me to resources and information to guide us through the process of supporting AJ. I learned that autism can interfere with social interaction and cause highly restricted interests and, in some people, repetitive behaviors or sensory challenges, such as sensitivity to light or sounds. AJ was officially diagnosed with Autism Spectrum Disorder at the age of 23 months. It was both liberating and heartbreaking. There was no time for tears, questions or doubts.